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Browse industry research articles, publications, and other important resources.

Patient Centered Outcomes Research resources

Improving the Patient-Centeredness of Alternative Payment Models
An infographic depicting the process of how core outcome set development for research offers insights to help improve the patient-centeredness of APMs.
Engaging patients, clinicians, and the community in a Clinical Data Research Network: Lessons learned from the CAPriCORN
Tambor E, Shalowitz M, Harrington, JM, et al. Engaging patients, clinicians, and the community in a Clinical Data Research Network: Lessons learned from the CAPriCORN CDRN. Learn Health Sys. 2019;e10079. https://doi.org/10.1002/lrh2.10079
Stakeholder Defined Research: Designing Studies that reflect the perspectives of patients, clinicians and payers (February 2014)
This is a presentation given by Pat Deverka as part of EPG Grand Rounds, at the University of Maryland
PCORnet PPRN Partner Meeting (January 2014)
A workshop hosted by PCORI for its Patient-Powered Research Network (PPRN) partners. The goal of the workshop was to provide PPRN partners with a forum to share resources, address concerns, and foster the creation of a high-performing, patient-powered collaborative.
PCORnet Kickoff Meeting (January 2014)
On January 21 and 22, 2014, the Engelberg Center for Healthcare Reform at the Brookings Institution hosted the kickoff meeting, "PCORnet: Building Evidence through Innovation and Collaboration. ' This event launched the development of a clinical research network aimed at delivering high quality care through patient-centered outcomes research. This was the first opportunity for PCORnet Partners to meet and begin exchanging ideas, strategies and best practices for scaling up effectiveness research focusing on interventional trials and observational studies.
Endocrine Metabolic Consortium Overview (Nov 2013)
As part of GPC-USA, the Endocrine-Metabolic Consortium will develop methodological standards for patient-centered outcomes research and comparative effectiveness research in endocrine and metabolic diseases.
Oncology Overview (2013)
Part of GPC-USA, the Oncology Consortium will develop methodological standards for research research in oncology.
Development of an EGD for Patient Reported Outcomes in Oncology (May 2013)
Ethan Basch, MD, and Amy Abernethy, MD gave this presentation at the Inaugural Green Park Collaborative meeting.
Recommendations for Incorporating Patient-Reported Outcomes into Clinical Comparative Effectiveness Research in Adult Oncology (May 2012)
This EGD provides recommendations to set a minimum standard that will ensure that data collection allows for examination of patients ' directly reported experiences in diverse studies of treatment effectiveness and outcomes in oncology.
Partnership in Applied Comparative Effectiveness Science (PACES)
The PACES initiative sought to further the development of patient centered outcomes research (PCOR) in the FDA. The project was designed to help the agency build expertise in the analytic tools, methods and best practices, so that staff could be better equipped to work with sponsors, and other federal agencies, as they design and evaluate PCOR. Funded by the FDA, PACES was a partnership between the FDA, Johns Hopkins University, General Dynamics IT, the Lewin Group, and CMTP.